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Expanding the Team: Meet the New Patient Advocates

February 14, 2024

Expanding the Team: Meet the New Patient Advocates

February 14, 2024
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In 2023, the eDyNAmiC Patient Advocates (PAs) grew their team and added new PAs from diverse backgrounds, each bringing their own lived experience to their role as PA.  Team eDyNAmiC is delighted to have new team members join, and we know that they will continue to challenge the investigators and trainees to endeavor to make new breakthroughs that will ultimately make a difference for people with cancer, their loved ones, caregivers, and the general public.

Chris Curtis

Chris is based in the UK and was diagnosed in 2011 with throat cancer. His treatment included radiotherapy, chemotherapy, a feeding tube, two neck dissections and lots of recovery. In 2012, he started the Swallows Head & Neck Support Group (now full charity status), which helped him concentrate on helping others and building his belief and confidence back again. Chris wants to ensure no one must live with this disease alone. His aim is to help patients and caregivers live life, with and beyond cancer, and improve their quality of life. The charity now helps patients and caregivers throughout the UK and has links with many countries around the world. Chris has been an active member of the European Patient Advocacy Track for the last five years. In 2017, he was recognised by Queen Elizabeth II with the Queen’s Award for Voluntary Service. 

Andrew Lang

Andrew is based in the UK and previously worked as a General Manager in large-scale wholesale distribution in the UK. Following a diagnosis of Bladder Cancer, he underwent a Da Vinci robot-assisted radical cystoprostatectomy in 2015 and remains free of cancer but continues to be monitored. As a survivor, he continues to stay in touch with the everyday concerns of the bladder cancer community through the members-only Facebook pages of the UK-based charity Fight Bladder Cancer. He believes there is an important place for the layperson in the process of communicating complex research to the general population and would like to help. 

After listening to the “Fireside Chat” between lead Patient Advocate, Dave Chuter, and investigator, Mariam Jamal-Hanjani, he is inspired to offer his support to Team eDyNAmiC. He will seek to keep an open and receptive mind as he learns about the research aims; indeed, he relishes the challenge.

Katell Maguet

Katell is a French researcher based in the Netherlands. She is a scientist at heart, passionate about working with data and innovative approaches. Over the years, her focus has shifted from numbers to understanding and improving people’s experiences.

In 2021, at the age of 40, she was diagnosed with Stage 3 colorectal cancer. Through three years of treatment and seven surgeries, her quality of life was profoundly affected. Along her patient journey, she faced various challenges, including the low awareness of early-onset colorectal cancer, the complexity of navigating the healthcare system and the difficulty of obtaining timely information.

She chose to become a patient advocate, aiming to give a voice to both patients and medical teams. By blending her multidisciplinary background with her personal experience as a patient, she aspires to make a significant impact on the patient’s journey.

Currently a EUPATI student, Katell collaborates with Digestive Cancers Europe (DiCE) and Inspire2live, a cancer foundation empowering patients, researchers and clinicians to work together to prevent, treat and eliminate cancer. Being a member of Team eDyNAmiC perfectly aligns with her mission.

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